Right to Choose and Private Autism and ADHD Assessments (for 5 to 18 year olds)

If your child may need an autism (ASD) or ADHD assessment, there are different routes you can take. This guide explains your options, what a good assessment should include, and what to consider before deciding.

Our aim is to help you choose a pathway that ensures your child receives a safe, high-quality assessment and the right support.

Support for your child should always be based on need and should not rely on a diagnosis.

1. Local NHS services

  • Delivered by local NHS teams
  • Follow agreed standards and national guidance
  • Provide assessment, diagnosis and ongoing care
  • Usually the most reliable route for ongoing support

2. Right to Choose (RTC)

  • Your GP can refer to another NHS-contracted provider
  • The NHS will fund the assessment if:
    • The provider has an NHS contract
    • Your GP agrees the referral is appropriate

Important:

  • Local NHS teams cannot always guarantee quality of all providers
  • Some providers may temporarily pause new assessments due to activity limits
  • This does not mean services have stopped – they should still accept referrals, and any agreed treatment will continue
  • The provider should provide all services offered within the contract where it is based
  • Your GP may not accept shared care e.g. prescribing medication.  You should check with them before you are referred.  Your provider should continue to offer this service if your GP declines.

3. Private providers

  • You pay for the assessment yourself
  • The NHS cannot guarantee quality or follow-up care

Important:

  • You may need to pay for further treatment
  • The ICB does not support shared care (prescribing of medication) for private assessments, and this guidance has been given to GPs
  • For ADHD, you may need to restart assessment with an NHS provider for treatment

All assessments should meet Lancashire and South Cumbria minimum standards, based on national (NICE) guidance.

These standards ensure:

  • Accurate diagnosis
  • A full understanding of your child’s needs
  • Clear recommendations for support

Autism (ASD) assessments

Who should be involved:

A high-quality autism assessment should involve a team of professionals (multidisciplinary team):

  • A paediatrician or child psychiatrist
  • A specialist Speech and Language Therapist
  • A clinical or educational psychologist

At least one professional should see your child in person

A diagnosis by one person alone is not appropriate

What tools and information should be used?

Standardised tools:

  • ADOS (Autism Diagnostic Observation Schedule)
    • A structured observation of communication and behaviour
    • Used by trained professionals

Information gathered:

  • Developmental history
  • Parent/carer questionnaires
  • School or SENCO input
  • Cognitive and learning information

Common questionnaires include:

  • CCC-2 – communication skills
  • SRS-2 – social communication and interaction

ADHD assessments

Who should be involved?

  • A qualified medical professional trained in ADHD assessment, that has seen your child in person
  • Ideally more than one professional involved

What tools should be used?

  • Conners questionnaires – behaviour and attention
  • SNAP-IV rating scale
  • QB test (optional) – computer-based attention test

These tools should always be used alongside a full clinical assessment.

Other important elements

A good assessment should:

  • Check for other conditions (e.g. anxiety, autism)
  • Include information from home and school
  • Consider learning and cognitive needs

If you wish to investigate a RTC referral or private assessment you can ask the provider to confirm that they are fully compliant with the questions below:

  • Do you follow NICE guidance and use the DSM-V?
  • Will my child be seen in person?
  • Do you take a full family and developmental history?
  • How will school be involved?
  • What assessment tools do you use?
  • Do you offer both diagnosis and treatment?
  • What support will be provided after diagnosis?

Ongoing care

  • Shared care (e.g. medication) is usually only available with NHS-contracted providers
  • Your GP decides whether shared care is appropriate, check with them before referral

Support in schools and services

  • Schools must consider all diagnostic reports
  • Support is based on need, not diagnosis
  • RTC diagnoses are treated the same as other NHS diagnoses

Waiting lists and choosing a pathway

  • Your child should only be on one waiting list for the same assessment
  • If you choose RTC or private, inform your NHS provider to be removed from their waiting list

Key messages for families

  • Local NHS pathways offer the most consistent care
  • RTC can be a good option if the provider has an NHS contract and meets minimum standards (see above)
  • Private assessments may lead to extra costs and limited NHS follow-up
  • Always check the quality and approach of providers


Position statement

Our Framework.

The framework aligns with NICE guidance and NHS autism standards of care. It aims to ensure children and young people receive high-quality assessments. The standards apply to local NHS, Right to Choose and private providers.

The ICB is developing a clinical commissioning policy for autism and ADHD, which will include the information on this page. We are also developing an accreditation process for private and Right to Choose providers. This process began in April 2026.

What parents and carers should look for

When considering a Right to Choose or private assessment, check that the provider meets the following minimum standards.

Autism assessments

  • Multidisciplinary panel diagnosis
    • The panel must include a physician, such as a paediatrician or child psychiatrist.
    • It must include a highly specialised speech and language therapist.
    • It must include a third professional with diagnostic training, preferably an educational or clinical psychologist.
    • At least one panel member must assess the child or young person in person.
    • A diagnosis by one person alone is not acceptable.
  • Information gathered before the assessment
    • A developmental history.
    • Questionnaires from home and the education setting, such as CCC-2 or SRS-2.
    • Cognitive information from the education setting.
  • Assessment tools and training
    • Core team members should be trained to use ADOS.
    • Using ADOS is desirable but not mandatory.
  • Educational input
    • Someone who knows the child or young person well, such as a SENCO, should contribute if they attend an education setting.

Note: If the child or young person does not attend an education setting, the provider should gather information about their previous time in education and current academic level. Information could also come from other professionals, such as the virtual school, Elective Home Education team, SEN officer or social worker.

ADHD assessments

  • Qualified medical professional
    • They must be trained in ADHD assessment.
    • They must assess the child or young person in person.
  • Screening for other conditions
    • The assessment must check for co-occurring mental health conditions.
  • Validated assessment tools
    • The provider should use tools such as Conners and SNAP-IV. A QB test is optional.
    • Learning needs and cognitive profiles should be considered.
  • Collaborative diagnosis
    • At least two professionals should be involved. NICE guidance allows a diagnosis by one professional, but two are preferred.
    • At least one professional must assess the child or young person in person.

Questions to ask a potential provider

  • Do you follow NICE guidance and DSM-5 criteria?
  • Will my child be assessed in person?
  • Will the autism assessment involve a multidisciplinary team?
  • Which assessment tools do you use, such as ADOS, Conners or SNAP-IV?
  • How do you involve education settings?
  • Will the final report include recommendations for ongoing care and support?
  • Do you have an NHS contract for Right to Choose assessments?
  • If the assessment is private, how will shared care for medication be managed?
  • Does the Right to Choose provider offer both assessment and ADHD treatment?
  • What treatment options does the provider offer?

Right to Choose pathway

  • The ICB cannot guarantee that every Right to Choose provider meets the minimum standards.
  • The NHS will fund a referral only if the provider holds an NHS contract with an ICB and the GP agrees that the referral is clinically appropriate.
  • The ICB keeps an updated list of approved providers for GPs. Parents and carers can ask their GP for advice.
  • Right to Choose legislation applies only to assessment and treatment.
  • Children and young people should have reasonable adjustments in place through their local area’s graduated response.
  • If a provider stops trading or withdraws its services, the ICB will work with other suitable providers to support affected patients where possible.

Private providers

  • The ICB cannot guarantee the quality of providers that do not hold an NHS contract.
  • Parents and carers should check that the provider meets the Lancashire and South Cumbria Minimum Standards Framework.
  • Private ADHD assessments from providers without an NHS contract are not supported for shared-care prescribing.
  • Families may need to restart the pathway with an NHS provider to access medication and follow-up care.

Ongoing care

  • Shared-care arrangements apply only when an NHS-contracted provider completes the assessment.
  • A private assessment does not guarantee NHS prescribing or follow-up care.
  • Shared care includes prescribing, monitoring and follow-up.
  • The child or young person’s GP practice decides whether to accept shared care.
  • A GP practice may decline a request because of capacity, clinical expertise or other care requirements.
  • Families should discuss shared care with their GP before referral and should not assume it will be available.

Key messages

  • Choose a local NHS pathway where possible to support quality and continuity of care.
  • The NHS can fund a Right to Choose assessment if the provider holds an NHS contract and the GP agrees to the referral.
  • Private assessments without an NHS contract will not lead to NHS prescribing or ongoing care. Families may face additional costs.
  • Check that providers meet the Lancashire and South Cumbria Minimum Standards Framework.
  • If a child or young person chooses a private or Right to Choose assessment, tell their local NHS provider so they can remove them from its waiting list.
  • A child or young person should not be on several waiting lists for the same assessment.
  • Support recommended after a non-NHS assessment may not be available locally.
  • Find information about local neurodevelopmental support.
  • ADHD assessments should generally be considered only for children aged six or older because of developmental milestones.
  • If a child or young person has acute mental health difficulties or is in crisis, an autism or ADHD assessment may not be appropriate at that time. Their GP should assess the risk and refer them to suitable services.

Will the NHS pay for a Right to Choose assessment?

Yes, if the provider has an NHS contract and the GP agrees that the referral is appropriate.

What if I choose a private provider?

You may need to pay for follow-up care. NHS prescribing will not be available, and the ICB cannot guarantee the quality of the assessment.

Why do the standards matter?

They help ensure that the child or young person receives a safe, accurate and high-quality assessment.

Where can I find Right to Choose providers?

View information about local providers. The page will be updated as providers are added. GPs can access a fuller list through the ICB intranet.

Where can I find support for my family?

Visit your local authority’s SEND Local Offer or the ICB neurodevelopmental pathway page.

The ICB has also commissioned Neu Way Support across Lancashire and South Cumbria. Visit the Neu Way Support website or call 0300 365 5030.

Can my child be on more than one waiting list for the same condition?

No. A child or young person should be on only one waiting list for each condition. If you choose a private or Right to Choose assessment, tell the NHS provider so they can remove your child from its waiting list.

Where can I find more information about Right to Choose and private providers?

Read the ICB’s frequently asked questions about neurodevelopmental referrals.

What is Right to Choose (RTC)?

“Right to Choose” (RTC) is a common term used to describe healthcare services being delivered under Patient Choice legislation. This is where a patient can choose a service commissioned by the NHS in another part of England, if the referring clinician (GP, dentist, or Optometrist) can see the benefit of it. For neurodevelopmental pathways, it would usually be the GP who makes this referral.

This does not apply to all services, but rather those led by consultants or senior mental health professionals. It is intended to enable people to access care without experiencing a poorer quality of service purely on the basis of where they live.

The policy covers all aspects of care as agreed within the contract for that service, including assessment and treatment. Partial pathways (such as assessment only pathways) are not supported if other interventions are included within the contract.

Some people believe that Right to Choose relates to a right to be referred. This is not correct, as the clinician must agree that the requested pathway is correct for that patient.

Clinical judgement overrides choice in all circumstances, and if a clinician, usually a GP does not believe that a particular pathway is correct for that patient they can decline to make that referral and may suggest an alternative pathway or provider. An example of this is where a pathway doesn’t offer physical health checks, when the GP thinks they are necessary.

More information about Patient Choice can be found here:

https://www.england.nhs.uk/long-read/patient-choice-guidance/

Why has my provider said that RTC activity has been paused?

Providers of adult ADHD services delivering care under Patient Choice (Right to Choose; RTC) legislation have been set activity plans for the current financial year. This is not a new arrangement.  The same approach was adopted for both adult and children’s ADHD services in the previous financial year (April 2025 to March 2026), but this arrangement ended on 31 March 2026.

By March 2026, some providers had exceeded their agreed activity plans for that year, and they paused new assessments temporarily. Assessment activity resumed for all providers in April 2026.

There has been no impact to the care of either children and young people (CYP) or adult services delivered under Patient Choice. This includes medication arrangements and annual reviews, or any other support function.

We are aware that some providers have incorrectly informed patients that the ICB has “stopped funding” for neurodevelopmental services. This is not true and any reported instance has been raised with the service in question. We apologise if any such message has caused distress or anxiety for you or your family.  

We would recommend that families research providers thoroughly and refer to the ICB guidance on the website (LSC Integrated Care Board :: Neurodevelopmental pathway), which provides information about what a good quality assessment should include.

Why are there fewer ‘approved’ RTC providers in Lancashire and South Cumbria compared with other areas nationally?

Many providers are commissioned nationally to deliver services for neurodevelopmental conditions. These providers must have a contract with an NHS commissioner somewhere in England and be able to deliver that service outside of their local area in the same manner they would to the population where they are commissioned and based.

Lancashire and South Cumbria ICB will only generally be aware of providers when a patient researches them and is referred by their GP, or a provider contacts the ICB directly to share a contract they have signed with another ICB. In both instances, Lancashire and South Cumbria ICB will review that contract and ensure it can be delivered locally.

There may be some delay in published details of “approved” providers. This is normally due to providers being unable to deliver services to patients in Lancashire and South Cumbria, which is a geographically large area with an incredibly diverse mix of rural, urban and coastal areas.

Another common reason is that the provider is not set up to prescribe medication for patients outside of the area they are commissioned. The ICB is working extensively to resolve such issues, but in some cases, this is not possible, and the contract will not be allowed for RTC.

Does the ICB have oversight for the quality of RTC Providers?

The ICB does not have any remit or authority for the service and what it is commissioned to deliver, and we therefore cannot guarantee the quality of the service, or that the provider are National Institute for Clinical Excellence (NICE) compliant (Overview | Attention deficit hyperactivity disorder: diagnosis and management | Guidance | NICE, Overview | Autism spectrum disorder in under 19s: recognition, referral and diagnosis | Guidance | NICE). The ICB has committed to developing a Clinical Commissioning Policy and accreditation process from April 2026 so that providers can be recommended for RTC referrals.

Whilst awaiting this list of accredited providers the ICB has produced some guidance for families seeking assessment through RTC or private providers.  Please see the website (LSC Integrated Care Board :: Neurodevelopmental pathway),  for further information.

More information about adult transformation can be found here: https://www.lancashireandsouthcumbria.icb.nhs.uk/our-work/adult-adhd/adult-adhd-position-statement

What is the difference between a private sector assessment and a Right to Choose assessment?

  • Right to Choose (RTC) assessments are NHS funded assessments delivered by a provider with an NHS standard contract, which can be undertaken by an NHS or independent sector provider.  These can only be accessed via a GP referral, if the GP feels that the referral is clinically appropriate.
  • Private sector assessments are not recognised as ‘Right to Choose’ (RTC) assessments if the referral wasn’t made by a GP under patient choice regulations.  This can be confusing where some providers have NHS contracts and also offer private care. Any care funded outside of NHS contracts is independent of the NHS and not subject to any monitoring or contractual management. We encourage you to fully explore the quality standards of any provider if you choose to fund care privately.

Do schools and local authorities have to accept private and RTC assessments?

The ICB has no say or role in what schools and local authorities will accept because the ICB has no responsibility for schools and local authorities.  However national guidance suggests schools and local authorities:

  • Must consider private diagnostic reports.
  • Cannot lawfully reject a report solely because it was obtained privately.
  • Must base support on needs, not diagnosis source.
  • Must treat an RTC assessment/diagnosis in the same way as any other NHS diagnosis.
  • May scrutinise the quality and clarity of any report and seek further advice.
  • Do not need evidence of a diagnosis to issue an education, health and care plan (EHCP).

Do local NHS providers have to accept the ASD or ADHD diagnosis for support and treatment if a diagnosis was obtained either via a RTC or private provider?

Right to Choose

Patient Choice legislation covers the full care pathway from assessment to treatment and should be completed by the chosen provider. There are some instances where a patient may request to move to a different provider, for example they move to a new part of the country, their relationship breaks down with the clinical team, or the provider no longer delivers NHS care due to suspension of contract.

These are exceptional circumstances, and in most cases, patients will remain with a single provider. Patient Choice does not apply at the point of treatment, and patients are therefore not able to move to a new provider through choice at this stage, for example to achieve shorter waiting times.

An RTC assessment is an NHS diagnosis and should be recognised by other NHS providers to avoid unnecessary cost to the NHS wherever possible. It remains however at the clinical discretion of an NHS provider who receives a referral whether they accept the diagnosis made by the referring service.

Common reasons for a referral being declined are if the diagnosis was made several years ago, insufficient diagnostic documentation was provided, or other clinical reasons, such as concerns over the process applied to achieve a diagnosis, or the nature of the medication prescribed.

Private referrals

NHS providers may accept privately funded assessments in some circumstances, but it may be more difficult to guarantee the quality of the assessment, given care is delivered outside of NHS contractual terms.

It is possible in all of the above circumstances that the NHS provider may decide a new assessment is required. For this reason, providers will not speed up referrals where a diagnosis has been made by another provider, over patients already waiting within the service. This is to ensure nobody is disadvantaged.

Do GPs need to accept shared care requests from RTC or privately funded care?

No, shared care is optional in all circumstances. GPs have the right to decline any requests for shared care based on the grounds of capacity, clinical expertise, or other factors relating to ongoing care.

If a patient is prescribed medication following a RTC referral, this shouldn’t have any effect on the patient being able to receive that medication under NHS conditions; the only thing that would be different is where they receive their prescription from.

Any indications of providers asking for payment from a patient outside of normal NHS prescribing processes should be immediately reported to the ICB for investigation using the following email address: lscicb-fw.patientexperience@nhs.net

Shared care with privately funded treatment is not recommended by the BMA (see guidance below) and GPs will generally decline such arrangements. GPs should not be put under pressure to accept shared care in any circumstance, as any decision remains fully within their discretion.

https://www.bma.org.uk/advice-and-support/gp-practices/managing-workload/general-practice-responsibility-in-responding-to-private-healthcare

Where can I find a list of Patient Choice (RTC) Providers?

A list of providers can be found on the ICB website - LSC Integrated Care Board :: Local providers .  Please note that this list was correct at the time of publication and is subject to change.  The ICB recommends that families fully research providers and refer to the guidance published on the ICB website.

Please note that these pages will only show providers where their contracts have been deemed qualifying under Patient Choice. It is not unusual for the ICB to be in conversation with providers, who have supplied contracts, but they have not yet been signed of as qualifying.

Accessibility tools

Return to header