Epilepsy services for children and young people (CYP) - improving the transition from paediatric to adult epilepsy services

Have your say

Are you a child with epilepsy aged 14 or over, or are you the parent or carer of a child with epilepsy? Do you attend the transition clinics to help young people with epilepsy transfer to adult epilepsy services, or have you done so in the last two years?

If so, we are inviting you to have your say about improving the service available during transition. This will also help to ensure we meet the national standard for epilepsy services for young people.

We would like to hear from young people aged 14 and above, and your parents or carers. We are interested in understanding experiences, views and expectations, hopes, and fears about this transition.

Young person (YP) transition clinics are currently provided across Lancashire and South Cumbria by Epilepsy Specialist Nurses (ESN) in Lancashire Teaching Hospitals (Preston), East Lancashire Hospitals Trust (Blackburn) and Blackpool Teaching Hospitals Trust. 

We have already been attending some of these epilepsy transition clinics, but we want to widen the opportunity for young people and parents with experience of these clinics to contribute.

We need your feedback if we are to improve the transition from paediatric to adult epilepsy services and ensure we meet the best standards of care. Please help us by completing the survey. Young people can ask their parents or carers for support in completing the survey if they wish to do so.